neyronrose (neyronrose) wrote,
neyronrose
neyronrose

my unscientific observations


Well, I finished Fixing Sex: Intersex, Medical Authority, and Lived Experience.  Parts of it were extremely dry, but the parts where she quoted people and told a little of their stories were good.  I like the anecdotal sections of books which are on at least partially scientific-medical topics.  The surgeons sounded very defensive about the operations they'd performed.  I expect you wouldn't want to admit that some of the work you'd done had caused massive scarring, broken down into fistulas, caused loss of sensation, and the necessity for a number of further operations.

It was interesting to get the parents' point of view on it all -- I hadn't seen that before.  I can accept that the parents were convinced that they were doing the right thing at the time, and that many had little medical knowledge going into it.  I think there's a lot more awareness now that you can find information on just about any topic on the Internet, so that parents might be able to get a variety of viewpoints that they wouldn't have gotten years ago.  I would hope that hearing from adults with the same conditions as their child would give the parents a lot of information.  Many of the parents seemed unable to ask questions regarding aspects of their children's future sex lives, though quite a high number seemed very willing to believe that if their children's genitals were operated on to make them look "normal" that the children would be heterosexual.  So what's heterosexual if you have a mix of male and female physical, chromosomal and genetic traits?  The parents really didn't want to hear that the children operated on to look female and raised as girls might not turn out to be straight, or even to ever feel particularly girlish, though that's what some of the children report.  Apparently the medical knowledge now is turning more towards the idea that if the baby gets a high amount of testosterone while in the womb, the baby may well turn out to feel more male.  On the flip side, many women with Complete Androgen Insensitivity Syndrome make it clear that they are women, even if they're chromosomally XY.
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